too much free time?

wow I'm really sorry to hear that. All and all I've got a pretty sweet situation comparatively and should not be complaining about it at all. Thank you for helping me put things in perspective again. No matter how bad things feel they can always get worse lol.

 

It's an easy generalization to make and to your husband-Ouch!

I'm a cancer surviver.when i had the tumor removed from my neck,causing permanent major nerve damage and a nervous system disorder as well.I can relate to your hubbys nerve troubles.

 

Dang! Like you, my husband is home with our child. If he didn't have a very high tolerance for pain, I don't think he'd be able to take care of him (he has RSDS in his left leg). He's currently trying spinal injections but they're not working too well so the next step may be an implant that delivers electrical pulses to the nerves to keep them from firing or something like that. Thankfully(?), his most recent break is what caused the nerve damage and that happened at work so all of his treatment is being covered by workmans' compensation for the time being. Are you getting any kind of treatment for your nerve damage/disorder?

Sorry for the hijack

 

Yes,i see 3 Doctors a month,therapy and conseling.I don't take the injections anymore as they found a combo of high dose neurotin(sp)(a powerfull nerve painkiller) and a mix of anti anxiety meds has kept things managable for a little while now.I guess,if they keep me a zombie,thats good enough

But i always get a kick out of it when i tell somebody i'm disabled and they say "you don't look disabled to me"lol.

 

oh no worries about hijacking. I'm just as interested as you are. Learning about how other people deal with stuff this hard helps me want to try to do better and maybe some day do something like this guy is doing. Take on the Tour | The Tour Begins 2011

 

You can definitely tell that my husband is disabled. He's got a ton of scars and had to have his right knee fused because he developed MRSA under the knee cap after the car accident that broke most of his leg bones. He keeps saying that it could have been much worse, he could have died like the lady that hit him head on at 60 MPH.

The break that caused the nerve condition was "minor" compared to the breaks the car accident caused but it still required 5 surgeries and left him with this nerve condition.

My husband is also on a "cocktail" but doesn't like taking the drugs unless he absolutely has to. He was on neurotin for a while but it made him feel like he had the flu all of the time. He is now taking Lyrica for the nerve pain and several pain killers, muscle relaxers, anxiety meds and sleep aids. Like I said, however, he doesn't really take them unless absolutely necessary. We're hoping that if/when his nerve pain issue becomes more under control, that he can get a knee put in because as you can imagine, not being able to bend his right leg makes getting around and doing stuff very very difficult.

Sorry for the ramble.

 

do you like building or carpentry?

When I was off for a few months with broken bones I was lazy at first but then got tired of that! so I did a lot of renovations around the house... now it looks nicer AND the value of the house went up

 

I apollogise for the hijack as well.And I hope for nothing but the best for him and that things improve to get that knee replaced.

And as far as "cocktails" lol,i never dreamed at age 42 that i would need one of those giant pill organizers (just like the ones you see on senior citizen's kitchen tables)holds two weeks of meds with about 80 compartments in giant easy to read lettering.

 

And I hope the same for you!

I use one of them for my vitamins. It isn't as big as yours but it does have separate compartments for AM and PM

 

man I feel for you guys, I'll so take my position over having a broken body. I've always been physical and would not know how to deal with things if I could not surf at least. I sorta get a kick out of looking in the best shape of my life while I'm "terminally ill" what ever that means. It's harder than I thought it would be to always remember to take my meds, so ya at 28 I use one of those pill sorters too. Just so I know if I took them or not.